ALS Texas

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Menu
  • Understanding ALS
    • ALS Symptoms
    • Stages of ALS
    • What Causes ALS?
    • Lou Gehrig and the History of ALS
    • ALS Glossary
  • Who We Are
    • What We Do
    • Our Leadership
    • Financial Information
    • Our Partners
    • Careers
  • Research
    • How ALS Patients Can Help
    • Research Resources
    • Research News
    • ALS Association Research
  • Navigating ALS
    • Newly Diagnosed
      • What Do I Do Now?
      • How to Share Your Diagnosis
      • Second Opinions
      • Resources
      • Clinics and Centers
    • Living with ALS
      • For Patients
      • Therapies & Care
        • Nutrition & Feeding Tubes
        • How to Improve Mobility
        • Dealing with Breathing Issues
        • Dealing with Speech & Swallowing Issues
        • Types of Assistive Equipment & Technology
        • Clinics and Centers
      • Living Setting
      • Daily Living Activities
      • Leisure Activities
      • Accessible Vehicles
      • More in Depth Resources/Manuals
    • Coping with ALS
      • Dealing with Anxiety/Depression
      • Changes in Thinking & Emotional Lability
      • Support Groups
      • Resources
    • For Caregivers
      • Caregiver Program
      • Caregiver Resources
      • Practicing Self Care
      • From One Caregiver To Another
    • For Youth & Children
    • Virtual Support Groups & Workshops
      • Past Virtual Event Recordings
    • Resources
      • Healthcare/Insurance
      • Hospice & Palliative Care
      • Finances/Employment
      • Taxes
      • Advance Directives
      • More in Depth Resources/Manuals
      • Register with ALS Texas
  • Get Involved
    • Walk to Defeat ALS®
      • Register for a Walk
    • Texas Chapter Events
      • Houston Marathon and Half Marathon
      • All In For ALS Poker Tournament
      • Sporting Clay Shoot
      • Under Ballou Skies Golf Classic and Party
      • ALS Fishing Classic
      • The Cowtown Affair
    • Calendar of Events
    • Fundraising Opportunities
    • Ways to Give
      • Corporate Partnerships
      • Workplace Giving
      • Community Giving Programs
    • Volunteer
    • The ALS Ice Bucket Challenge
  • Advocate
    • Advocacy Day
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Your Support Makes a Real Impact

December 29, 2017 by Tanner Hockensmith Leave a Comment

Our vision at ALS Texas is simple: to create a world without ALS. Everything we do – the services we provide, clinics we support, research we fund, and laws and policies we advocate for – is done to help search for effective treatments and find a cure for ALS.

None of this is possible without your support. Would you support our mission by giving a tax-deductible, year-end donation today?

Donate Now

ALS Texas Mission Impact from ALS Association of Texas on Vimeo.

[Read more…]

Filed Under: Fundraising Tagged With: als, ALS Advocacy, ALS awareness, als clinics, ALS Research, ALS Texas, ALS treatment, clinics, patient services

ALS Texas: 2017 By the Numbers

December 29, 2017 by Tanner Hockensmith Leave a Comment

At ALS Texas, we’re committed to providing quality services to people with ALS. From multidisciplinary clinics to support groups, financial assistance, loaning medical equipment free of charge, and research investment, we’re dedicated to helping patients live their lives to the fullest.

It’s only through the support of people like you that we’re able to do all this, and we want to thank you for helping make the past year a success. View the graphic below to see the impact of your donations in 2017.

[Read more…]

Filed Under: Fundraising Tagged With: als, ALS awareness, als clinics, ALS Texas, ALS treatment, clinics, Donate, Lou Gehrig's Disease, pals, patient services

Letter from the Executive Director: Year in Review

December 26, 2017 by Tanner Hockensmith 1 Comment

Executive Director Tanner Hockensmith and his family

Texas is big, really big. Our friends at Texas Humor stated that “if you drive long enough through Texas, you still might not get all the way through it.” As Texans, we pride ourselves on the sheer size of our great state.

However, its sprawling cities, growing suburbs, and vast rural areas pose a real challenge when we think about access. At ALS Texas, we believe that everyone living with ALS deserves to have access to top-notch clinical care, programs and resources that increase quality of life, clinical research studies, and an ALS community advocating for change.

[Read more…]

Filed Under: News Tagged With: advocacy, als, ALS Advocacy, ALS awareness, als clinics, ALS Research, ALS Texas, ALS treatment, Donate, Lou Gehrig's Disease, national als advocacy day, pals, patient services, Public Policy

Support Plays Important Role in Living with ALS

December 22, 2017 by wpengine Leave a Comment

By Ben Stephens

Ben and his family

Like most people with ALS, I’d noticed some changes long before the diagnosis came. In August 2013, I began having difficulty buttoning my shirt. After seeing three different neurologists, receiving an incorrect diagnosis of multifocal motor neuropathy, and a series of tests like a spinal tap and MRI, I finally received a diagnosis of ALS in December 2014.

ALS has forced a lot of changes on my life. As an estate planning and probate attorney, I have a number of clients who rely on me. After my diagnosis, I hired an associate, which allows me to continue to work while living with the realities of ALS. I quit driving about two years ago, and I’ve learned to work remotely. I had to sell my house because of the stairs, and my family and I moved to a duplex. ALS has affected almost every area of my life.

[Read more…]

Filed Under: Inspiring PALS, Stories Tagged With: als, ALS awareness, als clinics, als stories, ALS Texas, ALS treatment, clinics, diagnosis, Donate, Lou Gehrig's Disease, pals, patient services, support groups

A Letter from the Board President: Multidisciplinary Clinic Access Expands in Texas

December 21, 2017 by wpengine 1 Comment

When my father was diagnosed with ALS in November 2011, he and my mother began attending an ALS multidisciplinary clinic. He had been sick for three to four years and had seen doctor after doctor trying to get a diagnosis.  When he started attending clinic, the ease of a one-stop place for patients to see all the disciplines necessary to treat ALS gave my parents both relief and empowerment.

Aside from the relief of constant travel to numerous doctor’s appointments, multidisciplinary clinics help provide a better quality of life for a patient and caregiver.  From bonding with another patient or caregiver in the lobby over a shared experience to the ability to learn about new developments in treatments and research, the benefits are endless.

[Read more…]

Filed Under: News, Stories Tagged With: als, ALS awareness, als clinics, ALS Texas, clinical trial, clinics, pals, patient services, Research

Vote for ALS Texas to Win $25,000 from the Chevron Houston Marathon!

December 20, 2017 by Tanner Hockensmith Leave a Comment

Here’s a quick and easy way you can make a big difference and help ALS patients throughout the state of Texas!

Join the 2018 Chevron Houston Marathon Run for a Reason Charity Challenge! From Dec. 20 – 31, 2017 at 11:59 p.m. CT, you can vote for the ALS Association of Texas or make a donation. Three prizes will be awarded in the amount of $25,000 each in the following categories:

  • Charity Organization Who Receives the Greatest Number of Contest Votes During the Voting Period. Click here to vote now.
  • Most Money Raised by a Single Charity Organization During the Voting Period. Click here to donate.
  • Highest Number of Donations Made by Individual Donors During the Voting Period. Click here to donate.

Vote Now

Donate Now

[Read more…]

Filed Under: Houston Marathon Tagged With: als, ALS awareness, chevron marathon, houston, houston marathon, marathon

Austin Family Grateful for Outstanding Support on Their ALS Journey

December 18, 2017 by wpengine 1 Comment

By Jackie Barry

Jackie Barry lives with her husband Tom in Austin, Texas. She was diagnosed with ALS in 2016 and has been involved with the ALS Association since then. Read her story below.

In early 2015, I began having a speech problem, like a lisp, which seemed to get a little worse when I was stressed or tired. We were in the midst of getting home repairs done, so I thought it would just go away if I ignored it.

In August that year, I saw the doctor about it, and he suspected it could be a stroke or a brain tumor, among other things. I had an MRI, MRA and a carotid sonogram done, which all came back normal. Shortly after that, I was referred to a neurologist, who sent me for a swallow test, after which he believed it was a neuromuscular problem. He then referred me to Dr. Carlayne Jackson at UT Health in San Antonio. Dr. Jackson diagnosed me with ALS in February 2016.

[Read more…]

Filed Under: Inspiring PALS, Stories Tagged With: als, ALS awareness, als clinics, ALS drug, als stories, ALS Texas, ALS treatment, Austin, clinics, diagnosis, Donate, Lou Gehrig's Disease, Max's Ride, pals, patient services, san antonio, walk to defeat als

San Antonio Family Learns to Live with ALS

December 12, 2017 by wpengine 1 Comment

By Guillermo Garcia

Guillermo and his family

My name is Guillermo Garcia. I am from San Antonio, Texas, and I was diagnosed with ALS in November 2015. It was ironic, because in August of 2014 we saw the Ice Bucket Challenge explode. Prior to that, we didn’t really have any knowledge of ALS and didn’t personally know anyone who had it. A group of us got involved in the challenge with my daughter’s softball team, and we started challenging everyone to do it. But we still didn’t really have a good idea of what it was.

In October of that year, my wife asked if I’d noticed that I had some twitching going on. I hadn’t until she pointed it out. We waited about a month to see if it would go away, but it didn’t. It just so happened that at the time, I was also having some issues with what we thought was carpal tunnel. I told my doctor about the twitching and was referred to a neurologist for some tests. I was diagnosed with ALS in November 2015, a year after initially noticing symptoms.

[Read more…]

Filed Under: Inspiring PALS, Stories Tagged With: als, ALS awareness, als clinics, ALS News, als stories, ALS Texas, ALS treatment, clinics, diagnosis, Donate, fundraising, ice bucket challenge, Lou Gehrig's Disease, pals, patient services, san antonio, walk to defeat als, why we walk

Offering Help, Hope, and a Voice to those Living with ALS

December 6, 2017 by wpengine 3 Comments

By John Quinn

John and his family

Like many people with ALS, I first noticed symptoms several months before I was diagnosed. In December 2015, I was dropping my right foot when I walked and began fatiguing more easily than normal.

I went to multiple doctors and finally saw a neurologist who suspected I had ALS, and he recommended I go to Houston Methodist hospital. In May 2016, I went through a series of tests for two days at Houston Methodist hospital and was given an ALS diagnosis.

[Read more…]

Filed Under: Stories Tagged With: advocacy, advocate, als, ALS Advocacy, als clinics, ALS drug, ALS Research, als stories, ALS Texas, ALS treatment, clinical trial, clinics, diagnosis, disaster relief, Donate, houston, hurricane, Lou Gehrig's Disease, national als advocacy day, pals, patient services, Public Policy, support groups

#GivingTuesday: A Global Giving Movement | November 28, 2017

November 18, 2017 by Tanner Hockensmith Leave a Comment

Celebrated on the Tuesday following Thanksgiving, Black Friday, and Cyber Monday, #GivingTuesday is a global day of giving fueled by the power of social media and collaboration.

[Read more…]

Filed Under: Fundraising Tagged With: #GivingTuesday, als, ALS awareness, ALS Texas, Donate, fundraising, Lou Gehrig's Disease

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