Young children and teens often have a difficult time understanding what is happening to a loved one who has been diagnosed with ALS, and there are very few resources available to help them. A program for children and youth would address their unique needs and help them cope with a parent’s or grandparent’s diagnosis of ALS. Through workshops, camps, therapy groups, and children and youth-specific resources, we can help young people navigate the disease and support parents in caring for the emotional well-being of their children.
Workshops & Presentations for Youth and Children
Family Talks Series
For parents and children who love a person with ALS. Parents, please accompany your children under the age of 13 during this workshop.
Youth and children who love a person with ALS (children, grandchildren, great-grandchildren, nieces, nephews, and more) desire to be heard and told the truth. They often understand much more than we give them credit for, and starting from a point of openness and honesty is crucial. Children and parents will leave with an activity handbook to help serve as a companion in starting and continuing these open FAmiLy TalkS.
Watch Family Talks, Special Edition with the Gupta Family
Watch Young Caregivers Aren’t Alone, with Gabriel Poveda
Coming Soon: Virtual Youth & Children Support Groups
We’re developing virtual support groups for elementary and middle school, and teens and young adults. Groups will start meeting in 2021.
Please contact Tonya if you have any questions or need more information.