We are still connecting! It just looks a little different.
Our team is embracing technology to find new ways to connect and stay in contact with our people with ALS and Caregivers. Please take a look below to see what virtual connection groups & workshops we have in store for the coming weeks!
May 27th
Austin Connection Group – 12:30pm
Questions? Contact Jennifer.
May 28th
Brewed Awakenings – 4:00pm
A workshop for women caregivers.
Take a break with ALS Association of Texas and a fresh cup of coffee (or tea). Women caregivers juggle A LOT in addition to providing care for a loved one – careers, family, exhaustion, guilt… and so much more. Let’s carve out some time for self-care, to connect with and support each other, and to bring beauty inside out.
Questions? Contact Tonya.
May 30th
Houston Connection Group – 11:00am
Questions? Contact Paulette.
June 4th
San Antonio Caregiver Group – 1:00pm
Questions? Contact Steve.
Dallas/Fort Worth Connection Group – 7:00pm
Questions? Contact Amy.
June 5th
South Austin Caregiver Group – 12:00pm
Questions? Contact Jennifer.
June 6th
Family Talks Part I (ages 7-12): What is ALS and How Do I Talk About It? – 11:00am
For parents and children ages 7-12, who love a person with ALS. Parents, please accompany your children under the age of 13 during this workshop.
Youth and children who love a person with ALS (children, grandchildren, great-grandchildren, nieces, nephews, and more) desire to be heard and told the truth. They often understand much more than we give them credit for, and starting from a point of openness and honesty is crucial. Children and parents will receive an activity handbook to help serve as a companion guide in starting and continuing these open fAmiLy talkS.
Questions? Contact Tonya.
June 9th
Bereavement Support Group – 11:00am
For people who have lost a loved one to ALS.
Does your grief feel worse to you during this crisis? You are not alone and it’s completely normal. The world is changing quickly and unexpectedly, and this has been hard on everyone. Join us in this virtual caregiver group – a safe place to ask questions, vent, and connect with others who are also grieving – you are not alone. While this event will be focused on adults who are grieving the loss of a loved one, we will also discuss some tools and resources to help support grieving youth and children during this uncertain and socially distanced time and will take a deeper dive into those tools in a future workshop.
Questions? Contact Tonya.
El Paso Connection Group – 5:30pm
Questions? Contact Jennifer.
June 10th
Family Talks Part 1 for Teens (ages 13-18): The ALS Experience: It’s Different and It’s Hard – 7:00pm
A workshop for parents and teens ages 13-18.
Teens desire to be heard and told the truth. In this workshop, young people will find understanding support in having crucial fAmiLy talkS, connect with others who “get” the ALS experience, and receive tools and resources to accompany the journey.
Questions? Contact Tonya.
June 11th
San Antonio Connection Group – 12:30pm
Questions? Contact Steve.
Corpus Christi Caregiver Group – 2:30pm
Questions? Contact Steve.
June 15th
North Austin Caregivers Group – 12:00pm
Questions? Contact Jennifer.
June 16th
North Houston Connection Group – 6:30pm
Questions? Contact Paulette.
June 24th
Austin Connection Group – 12:30pm
Questions? Contact Jennifer.
Family Talks Part II (ages 7-12): The Challenges of Being a Young Caregiver – 6:30pm
For parents and children ages 7-12, who love a person with ALS. Parents, please accompany your children under the age of 13 during this workshop.
Youth and children who love a person with ALS (children, grandchildren, great-grandchildren, nieces, nephews, and more) desire to be heard and told the truth. They often understand much more than we give them credit for, and starting from a point of openness and honesty is crucial. Children and parents will receive an activity handbook to help serve as a companion guide in starting and continuing these open fAmiLy talkS.
Questions? Contact Tonya.
June 25th
Brewed Awakenings – 7:30am
A workshop for women caregivers.
Take a break with ALS Association of Texas and a fresh cup of coffee (or tea). Women caregivers juggle A LOT in addition to providing care for a loved one – careers, family, exhaustion, guilt… and so much more. Let’s carve out some time for self-care, to connect with and support each other, and to bring beauty inside out.
Questions? Contact Tonya.
June 27th
Houston Connection Group – 11:00am
Questions? Contact Paulette.
Corpus Christi Connection Group – 2:00pm
Questions? Contact Steve.
June 30th
Stress Less On Purpose – 11:00am
A workshop for people with ALS and their caregivers.
ALS Association of Texas wants to stay connected – no matter what! Join us in our virtual cAring for Loved oneS workshop- Stress-Less on Purpose. A workshop for caregivers about self-care and direction in the midst of ALL of life’s curveballs. Participants will receive an easy and effective first aid kit of exercises for easing your body’s reaction to stress, gain a renewed or clarified understanding of your personal “why”, and how trauma can help guide your purpose.
Questions? Contact Tonya.
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Past Events
March 26th
Stress Less On Purpose
ALS Association of Texas wants to stay connected – no matter what! Join us in our virtual cAring for Loved oneS workshop- Stress-Less on Purpose. A workshop for caregivers about self-care and direction in the midst of ALL of life’s curveballs. Participants will receive an easy and effective first aid kit of exercises for easing your body’s reaction to stress, gain a renewed or clarified understanding of your personal “why”, and how trauma can help guide your purpose.
March 28th
Family Talks Series
For parents and children who love a person with ALS. Parents, please accompany your children under the age of 13 during this workshop.
Youth and children who love a person with ALS (children, grandchildren, great-grandchildren, nieces, nephews, and more) desire to be heard and told the truth. They often understand much more than we give them credit for, and starting from a point of openness and honesty is crucial. Children and parents will leave with an activity handbook to help serve as a companion in starting and continuing these open FAmiLy TalkS.
March 31st
Elective Tracheostomy: The Decision Making Process for ALS Patients
For people with ALS and their caregivers.
Join Dr. Gregory Holt, PhD, RRT, and Director of Operations at Respiratory Quality Services and a Diplomate at the American Board of Sleep Medicine. Dr. Holt will walk you through the process of elective tracheostomy, the pros and cons of the procedure, and answer your questions to enable you and your caregiver to make an informed decision for the future. RQS provides in-home respiratory management for the ALS community and is a statewide sponsor of the ALS Association Texas Chapter.
April 7th
Exploring Assistive Technology Options
For people with ALS and their caregivers.
As ALS progresses, patients lose their ability to speak and augmentative communication methods need to be explored so that a person with ALS continues to have an outlet to share thoughts and feelings. In this presentation, different methods for communication will be discussed including low-tech items such as communication boards to high-tech options such as eye gaze devices.
April 14th
Control Bionics Speech Generating Device with Maddie Reinlein – 12:00pm
For people with ALS and their caregivers.
Control Bionics is an industry leader in EMG access and communication devices with its NeuroNode product line. They have recently developed a new device – the NeuroNode Trilogy. The NN Trilogy is a speech-generating device that combines the power of eye control with NeuroNode technology. This device allows patients to utilize eye control and NeuroNode control together or separately as their condition and communication need change.
April 16th
Virtual Town Hall
Join us for a Virtual Town Hall! Learn how we are continuing to support Texans with ALS and making advances in research during COVID-19. Check out a message from our Executive Director, Tanner Hockensmith, here.
Questions? Contact Catherine.
April 28th
Stress Less on Purpose
A workshop for people with ALS and their caregivers.
ALS Association of Texas wants to stay connected – no matter what! Join us in our virtual cAring for Loved oneS workshop- Stress-Less on Purpose. A workshop for caregivers about self-care and direction in the midst of ALL of life’s curveballs. Participants will receive an easy and effective first aid kit of exercises for easing your body’s reaction to stress, gain a renewed or clarified understanding of your personal “why”, and how trauma can help guide your purpose.
Questions? Contact Tonya.
May 8th
Dysphagia and Aspiration Pneumonia with ITF Pharma
A workshop for people with ALS and their caregivers.
Shekinah Roe, MSN, MBA, RN, Senior Medical Science Liaison will discuss the challenges of dysphagia and risk of aspiration pneumonia in the ALS patient.
Questions? Contact Steve.
Maintaining Independence at Home
A workshop for people with ALS and their caregivers.
Antoinette Verdone with ImproveAbility will present ideas on how you can maintain your independence at home. She will discuss options for accessibility and also options for increased independence such as environmental controls.
Questions? Contact Steve.