We are still connecting! It just looks a little different.
Our team is embracing technology to find new ways to connect and stay in contact with our people with ALS and Caregivers. Please take a look below to see what virtual connection groups & workshops we have in store for the coming weeks!
August 6th
Moving Forward in a Time of Change – 11:00am
For people with ALS and their Caregivers
COVID 19 – Understanding How a Crisis Affects The Way We Feel
San Antonio Caregiver Group – 1:00pm
Questions? Contact Steve.
Dallas/Fort Worth Connection Group – 7:00pm
Questions? Contact Steve.
August 7th
Austin Caregiver Group – 12:00pm
Questions? Contact Jennifer.
August 11th
Bereavement Support Group – 11:00am
For anyone who has lost a loved one to ALS.
Questions? Contact Tonya.
August 13th
San Antonio Connection Group – 12:30pm
Questions? Contact Steve.
Corpus Christi Caregiver Group – 2:30pm
Questions? Contact Linda.
August 18th
Houston Connection Group – 6:30pm
Questions? Contact Jennifer.
August 21st
Cough Assist and Suction Machines Workshop – 1:00pm
For people with ALS and their caregivers.
RQS will be presenting on the role of cough assist and suction in the management of respiratory hygiene in ALS.
Questions? Contact Steve.
August 24th
Trilogy Workshop – 12:00pm
For people with ALS and their caregivers.
RQS will be presenting on the Trilogy device as it relates to ensuring proper ventilation for people with ALS.
Questions? Contact Steve.
August 25th
Corpus Christi Connection Group – 2:00pm
Questions? Contact Linda.
August 26th
Austin Connection Group – 12:30pm
Questions? Contact Jennifer.
August 27th
Brewed Awakenings – 7:30am
A connection group for women caregivers.
Take a break with ALS Association of Texas and a fresh cup of coffee (or tea). Women caregivers juggle A LOT in addition to providing care for a loved one – careers, family, exhaustion, guilt… and so much more. Let’s carve out some time for self-care, to connect with and support each other, and to bring beauty inside out.
Questions? Contact Tonya.
August 31st
Stress Less On Purpose – 11:00am
For anyone affected by ALS who is interested in being intentional about managing stress.
Join us in our virtual cAring for Loved oneS workshop- Stress-Less on Purpose. A workshop about self-care and direction in the midst of ALL of life’s curveballs. Participants will receive an easy and effective first aid kit of exercises for easing your body’s reaction to stress, gain a renewed or clarified understanding of your gifts and personal “why”, and how trauma can help guide you in living life more PurposeFULLy.
Questions? Contact Tonya.
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Past Events
Stress Less On Purpose
A workshop for anyone affected by ALS interested in being intentional about managing stress.
Join us in our virtual cAring for Loved oneS workshop- Stress-Less on Purpose. A workshop about self-care and direction in the midst of ALL of life’s curveballs. Participants will receive an easy and effective first aid kit of exercises for easing your body’s reaction to stress, gain a renewed or clarified understanding of your gifts and personal “why”, and how trauma can help guide you in living life more PurposeFULLy.
Family Talks Series
For parents and children who love a person with ALS. Parents, please accompany your children under the age of 13 during this workshop.
Youth and children who love a person with ALS (children, grandchildren, great-grandchildren, nieces, nephews, and more) desire to be heard and told the truth. They often understand much more than we give them credit for, and starting from a point of openness and honesty is crucial. Children and parents will leave with an activity handbook to help serve as a companion in starting and continuing these open FAmiLy TalkS.
Elective Tracheostomy: The Decision Making Process for ALS Patients
For people with ALS and their caregivers.
Join Dr. Gregory Holt, PhD, RRT, and Director of Operations at Respiratory Quality Services and a Diplomate at the American Board of Sleep Medicine. Dr. Holt will walk you through the process of elective tracheostomy, the pros and cons of the procedure, and answer your questions to enable you and your caregiver to make an informed decision for the future. RQS provides in-home respiratory management for the ALS community and is a statewide sponsor of the ALS Association Texas Chapter.
Exploring Assistive Technology Options
For people with ALS and their caregivers.
As ALS progresses, patients lose their ability to speak and augmentative communication methods need to be explored so that a person with ALS continues to have an outlet to share thoughts and feelings. In this presentation, different methods for communication will be discussed including low-tech items such as communication boards to high-tech options such as eye gaze devices.
Control Bionics Speech Generating Device with Maddie Reinlein – 12:00pm
For people with ALS and their caregivers.
Control Bionics is an industry leader in EMG access and communication devices with its NeuroNode product line. They have recently developed a new device – the NeuroNode Trilogy. The NN Trilogy is a speech-generating device that combines the power of eye control with NeuroNode technology. This device allows patients to utilize eye control and NeuroNode control together or separately as their condition and communication need change.
Virtual Town Hall
Join us for a Virtual Town Hall! Learn how we are continuing to support Texans with ALS and making advances in research during COVID-19. Check out a message from our Executive Director, Tanner Hockensmith, here.
Dysphagia and Aspiration Pneumonia with ITF Pharma
A workshop for people with ALS and their caregivers.
Shekinah Roe, MSN, MBA, RN, Senior Medical Science Liaison will discuss the challenges of dysphagia and risk of aspiration pneumonia in the ALS patient.
Maintaining Independence at Home
A workshop for people with ALS and their caregivers.
Antoinette Verdone with ImproveAbility will present ideas on how you can maintain your independence at home. She will discuss options for accessibility and also options for increased independence such as environmental controls.