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        • How to Improve Mobility
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      • Register for a Walk
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      • The Cowtown Affair
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ALS: Worth Fighting

July 31, 2015 by Tanner Hockensmith 8 Comments

Ernie Worth, Patient with ALSGuest post by Ernie Worth, a patient with ALS

My name is Ernie Worth. I am a 38-year-old husband, a father of three, and an ALS patient.

For months leading up to my diagnosis last fall, I had been experiencing speech difficulties. For me, this was very strange, as I have always enjoyed giving presentations, public speaking, and the like. It started out subtly, and gradually got worse as time went by. I was also rapidly losing weight, and since I have always been very physically fit and health-conscious, the physical change was quite obvious and disturbing.

[Read more…]

Filed Under: Ice Bucket Challenge, Inspiring PALS Tagged With: als, als stories, ice bucket challenge, pals, support groups

ALSA TX Goes to Washington: Advocacy Day 2015

June 12, 2015 by Tanner Hockensmith Leave a Comment

We attend the Public Policy and Advocacy Conference every year, and it’s always such an amazing time. PALS and their supporters and loved ones get to talk directly to the staffers and congressional leaders who shape our nation’s policies, promoting increased funding for ALS research, and gathering support for laws and regulations that affect the daily lives of people with ALS.

ALSA TX Advocacy Day 2015_3

[Read more…]

Filed Under: Advocacy, News Tagged With: advocacy, advocate, als, Public Policy

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