Juan Reyes and his wife Meg attended the ALS Association Advocacy Conference in Washington, D.C. this May.
My name is Juan Reyes, and I live with ALS. I was diagnosed in October 2015, but in hindsight, I started showing symptoms in late 2013. What began as slight weakness in my left hand grip and thumb has progressed to severe weakness in all extremities and includes difficulty walking and loss of balance. I now use a motorized wheelchair to get around, and many facets of my life have changed because of ALS. The big question, of course, is “Why me?” and “How did I get it?”