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  • Understanding ALS
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    • ALS Association Research
  • Navigating ALS
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      • What Do I Do Now?
      • How to Share Your Diagnosis
      • Second Opinions
      • Resources
      • Clinics and Centers
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      • For Patients
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        • Nutrition & Feeding Tubes
        • How to Improve Mobility
        • Dealing with Breathing Issues
        • Dealing with Speech & Swallowing Issues
        • Types of Assistive Equipment & Technology
        • Clinics and Centers
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      • Leisure Activities
      • Accessible Vehicles
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      • Dealing with Anxiety/Depression
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      • Register for a Walk
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      • ALS Fishing Classic
      • The Cowtown Affair
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Dodgeball Tournament Raises Over $55,000 in Three Years to Support ALS Research

June 27, 2017 by Elise Bernard 1 Comment

ALS dodgeball tournament hosts

Three days before Christmas 2009, Turner Corbett’s family got the devastating news that his mom, Jennifer, had been diagnosed with ALS. Turner was just 12 years old.

Wanting to make the most of a difficult situation, in 2015, Turner created a benefit event that would raise money for ALS research. After running through some ideas with his friend Alex Doswell, they decided a dodgeball tournament would be the most fun and family friendly.

[Read more…]

Filed Under: Fundraising, Research Tagged With: advocacy, als, ALS awareness, ALS Research, als stories, ALS Texas, fundraising, pals, Research

ALS Films to Watch

May 24, 2017 by Tanner Hockensmith 1 Comment

There are many ways, both big and small, to raise ALS awareness. Some people have used their filmmaking or public speaking talents to craft compelling stories of those living with this disease. From TED talks to award-winning documentaries, these videos inspire, educate, challenge and entertain viewers, while celebrating the lives of people with ALS and the contributions they have made.

Below are a few must see videos and films about ALS that are worth watching and sharing with family and friends.

[Read more…]

Filed Under: Stories Tagged With: als, ALS awareness, als stories, ALS Texas, pals

ALS Camps Provide Hope, Help Kids Cope

May 12, 2017 by Tanner Hockensmith 3 Comments

Although children and teens are very unlikely to develop ALS, that doesn’t mean they aren’t affected by the disease. 85% of people who do have ALS report having children or grandchildren who are directly impacted. Coping with a parent or grandparent’s ALS diagnosis is never easy, but it is especially hard for children, who don’t have the same emotional maturity as their adult counterparts. Becoming a caregiver for someone is a difficult transition to make when you’re used to having that person take care of you. And since it’s unlikely that any of a child’s friends would have experience dealing with ALS, it can leave them feeling alone, with no one to really talk to.

[Read more…]

Filed Under: Advocacy Tagged With: advocacy, als, ALS awareness, als stories, Donate

Chili and Charity: How the World’s Largest Chili Cookoff Became a Party with a Purpose

March 30, 2017 by Elise Bernard 7 Comments

For 361 days of the year, Terlingua, Texas is a ghost town. For the other four days, people pour in from across the world for the Original Terlingua International Championship Chili Cookoff. For the past 50 years, Terlingua has been the home of the world’s largest and most competitive chili cookoff.

What began in 1967 as a gimmick to promote Dallas Morning News journalist Frank X. Tolbert’s book A Bowl of Red has developed into an annual tradition, attracting chili cooks from across the world. The winner of the very first championship cookoff, Wick Fowler, was diagnosed with and passed away from ALS, and over 30 years after its start, the cookoff became a party with a purpose.

[Read more…]

Filed Under: Fundraising, Stories Tagged With: als, als stories, ALS Texas, chili cookoff, contest, fundraising, Terlingua

Caregiver reflects on ALS journey, impact of donations

November 28, 2016 by Elise Bernard 1 Comment

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When Kristin Sedate’s father was diagnosed with ALS in 2014, she stepped in to serve as one of his primary caregivers. Read her story about their journey through ALS and what your donations meant to their family. 

[Read more…]

Filed Under: Inspiring PALS, Stories Tagged With: als, als clinics, als stories, ALS Texas, assistive technology, caregiver, caregivers, clinics, diagnosis, grants, pals, patient services, san antonio, support groups, walk to defeat als

In Honoring One of Their Own, Buffalo Wild Wings Hopes to Help Many

October 4, 2016 by Elise Bernard 2 Comments

Sha Groves lost her husband Greg to ALS in 2014, but continues to be involved with ALS Texas to help those currently battling this disease. Read her story about their journey with ALS and how Buffalo Wild Wings stepped in to help. 

Robert Gregory Groves, better known as “Greg,” was a lovely man. From our first introduction, he seemed very quiet. He loved to observe and was quite the jokester. He started his career at Buffalo Wild Wings in November 2005 as an Assistant General Manager in Rosenberg, Texas. He worked his way up to General Manager and then was eventually promoted to Regional Manager. The company was under huge growth at the time, and he knew he had found his home. He was responsible for opening up several locations in Houston and the surrounding area.

[Read more…]

Filed Under: Fundraising, Inspiring PALS, Stories Tagged With: als, als stories, ALS Texas, Donate, fundraising, houston, pals, patient services

After 13 Years, Regional Development Manager Bonnie Walsh is Still Inspired by Patients and Families

September 19, 2016 by Bonnie Walsh 3 Comments

Bonnie Walsh has served the ALS Association of Texas in different roles since March 2003. She currently serves as the Regional Development Manager for the Southwest Region of the state, managing two Walks to Defeat ALS and Battle ALS with Flowers, as well as other development activities. Read her story about her time with the Chapter and how it’s affected her life – both professionally and personally. 

[Read more…]

Filed Under: Fundraising, Stories, Walk to Defeat ALS Tagged With: als, als stories, ALS Texas, battle ALS with flowers, fundraising, ice bucket challenge, pals, san antonio, walk to defeat als

One ALS Patient Shares Importance of Walk to Defeat ALS

September 7, 2016 by Elise Bernard Leave a Comment

Cabe Photo 2

David Cabe was diagnosed with ALS in 2015 and is an active participant in the Austin Walk to Defeat ALS as part of his team, Cabe’d Crusaders. Read about what participating in the Walk means for him and his battle with ALS.

As many of you know, I have ALS. This is a devastating disease. By the time I was diagnosed, it had already robbed me of the ability to walk unaided and was relentlessly taking away the ability to use my hands, swallow, speak, and breathe. But just knowing where to turn after my diagnosis was almost as daunting and overwhelming as the disease itself.

[Read more…]

Filed Under: Fundraising, Inspiring PALS, Stories, Walk to Defeat ALS Tagged With: als, als clinics, als stories, ALS Texas, Donate, fundraising, pals, patient services, walk to defeat als, why we walk

Fostering Confidence, Hope for Those with ALS Motivates Care Services Director

August 16, 2016 by Steve Morse Leave a Comment

Steve Morse has been with the ALS Association of Texas for nine years, serving in various capacities. Read his story about how he got involved, the impact of his work in his life, and his vision for the ALS community in Texas. 

I went to school to study psychology and always thought I would be a psychologist. But when I finished my bachelor’s degree, I was ready to be done with school for the time being. I went to work for a brain injury rehab clinic and helped people who had had traumatic brain injuries from strokes, car accidents, or other head trauma.  It was the first job that I had where I could apply what I learned in school. After that, I went into the mental health field working for a company that cared for people with bipolar disorder and schizophrenia. Our goal was to keep them out of the psychiatric hospital – to teach them about medication management, how to live in a community with other people, and how to manage their mental health issues.

[Read more…]

Filed Under: Stories Tagged With: als, als stories, ALS Texas, patient services

ALS: Worth Fighting

July 31, 2015 by Tanner Hockensmith 8 Comments

Ernie Worth, Patient with ALSGuest post by Ernie Worth, a patient with ALS

My name is Ernie Worth. I am a 38-year-old husband, a father of three, and an ALS patient.

For months leading up to my diagnosis last fall, I had been experiencing speech difficulties. For me, this was very strange, as I have always enjoyed giving presentations, public speaking, and the like. It started out subtly, and gradually got worse as time went by. I was also rapidly losing weight, and since I have always been very physically fit and health-conscious, the physical change was quite obvious and disturbing.

[Read more…]

Filed Under: Ice Bucket Challenge, Inspiring PALS Tagged With: als, als stories, ice bucket challenge, pals, support groups

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