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        • How to Improve Mobility
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        • Dealing with Speech & Swallowing Issues
        • Types of Assistive Equipment & Technology
        • Clinics and Centers
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      • Register for a Walk
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      • ALS Fishing Classic
      • The Cowtown Affair
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New Salsa Business Provides Purpose After an ALS Diagnosis

April 16, 2018 by Elise Bernard 4 Comments

skips-salsa
Tami Potts has been canning her homemade salsa since her 20s.

Tami Potts has been canning her homemade salsa since her 20s. People have always told her that she should start her own salsa company, but between raising four kids and working, she never had much time to pursue that opportunity.

In the summer of 2016, Tami’s right hand started going numb. Her doctor told her it was time to consider another profession, as she spent many long days as a mail carrier. Tami’s daughter suggested finally starting up that salsa business.

[Read more…]

Filed Under: Inspiring PALS, Stories Tagged With: als, ALS awareness, als stories, ALS Texas, Amarillo, Lou Gehrig's Disease, pals

Houston Marathon Participants Run for a Reason: To Fight ALS

January 16, 2018 by Elise Bernard 4 Comments

On Sunday, January 14, 35 runners participated in the Chevron Houston Marathon Run for a Reason Program in support of the ALS Association of Texas. The Run for a Reason program “connects the philanthropic community to passionate race participants willing to fundraise and raise awareness for meaningful causes,” according to the Marathon website. This is the eighth year that the ALS Association of Texas has been chosen as an official Charity of Choice.

[Read more…]

Filed Under: Houston Marathon Tagged With: als, ALS awareness, als stories, ALS Texas, chevron marathon, fundraising, houston, houston marathon, Lou Gehrig's Disease, marathon

Support Plays Important Role in Living with ALS

December 22, 2017 by wpengine Leave a Comment

By Ben Stephens

Ben and his family

Like most people with ALS, I’d noticed some changes long before the diagnosis came. In August 2013, I began having difficulty buttoning my shirt. After seeing three different neurologists, receiving an incorrect diagnosis of multifocal motor neuropathy, and a series of tests like a spinal tap and MRI, I finally received a diagnosis of ALS in December 2014.

ALS has forced a lot of changes on my life. As an estate planning and probate attorney, I have a number of clients who rely on me. After my diagnosis, I hired an associate, which allows me to continue to work while living with the realities of ALS. I quit driving about two years ago, and I’ve learned to work remotely. I had to sell my house because of the stairs, and my family and I moved to a duplex. ALS has affected almost every area of my life.

[Read more…]

Filed Under: Inspiring PALS, Stories Tagged With: als, ALS awareness, als clinics, als stories, ALS Texas, ALS treatment, clinics, diagnosis, Donate, Lou Gehrig's Disease, pals, patient services, support groups

Austin Family Grateful for Outstanding Support on Their ALS Journey

December 18, 2017 by wpengine 1 Comment

By Jackie Barry

Jackie Barry lives with her husband Tom in Austin, Texas. She was diagnosed with ALS in 2016 and has been involved with the ALS Association since then. Read her story below.

In early 2015, I began having a speech problem, like a lisp, which seemed to get a little worse when I was stressed or tired. We were in the midst of getting home repairs done, so I thought it would just go away if I ignored it.

In August that year, I saw the doctor about it, and he suspected it could be a stroke or a brain tumor, among other things. I had an MRI, MRA and a carotid sonogram done, which all came back normal. Shortly after that, I was referred to a neurologist, who sent me for a swallow test, after which he believed it was a neuromuscular problem. He then referred me to Dr. Carlayne Jackson at UT Health in San Antonio. Dr. Jackson diagnosed me with ALS in February 2016.

[Read more…]

Filed Under: Inspiring PALS, Stories Tagged With: als, ALS awareness, als clinics, ALS drug, als stories, ALS Texas, ALS treatment, Austin, clinics, diagnosis, Donate, Lou Gehrig's Disease, Max's Ride, pals, patient services, san antonio, walk to defeat als

San Antonio Family Learns to Live with ALS

December 12, 2017 by wpengine 1 Comment

By Guillermo Garcia

Guillermo and his family

My name is Guillermo Garcia. I am from San Antonio, Texas, and I was diagnosed with ALS in November 2015. It was ironic, because in August of 2014 we saw the Ice Bucket Challenge explode. Prior to that, we didn’t really have any knowledge of ALS and didn’t personally know anyone who had it. A group of us got involved in the challenge with my daughter’s softball team, and we started challenging everyone to do it. But we still didn’t really have a good idea of what it was.

In October of that year, my wife asked if I’d noticed that I had some twitching going on. I hadn’t until she pointed it out. We waited about a month to see if it would go away, but it didn’t. It just so happened that at the time, I was also having some issues with what we thought was carpal tunnel. I told my doctor about the twitching and was referred to a neurologist for some tests. I was diagnosed with ALS in November 2015, a year after initially noticing symptoms.

[Read more…]

Filed Under: Inspiring PALS, Stories Tagged With: als, ALS awareness, als clinics, ALS News, als stories, ALS Texas, ALS treatment, clinics, diagnosis, Donate, fundraising, ice bucket challenge, Lou Gehrig's Disease, pals, patient services, san antonio, walk to defeat als, why we walk

Offering Help, Hope, and a Voice to those Living with ALS

December 6, 2017 by wpengine 3 Comments

By John Quinn

John and his family

Like many people with ALS, I first noticed symptoms several months before I was diagnosed. In December 2015, I was dropping my right foot when I walked and began fatiguing more easily than normal.

I went to multiple doctors and finally saw a neurologist who suspected I had ALS, and he recommended I go to Houston Methodist hospital. In May 2016, I went through a series of tests for two days at Houston Methodist hospital and was given an ALS diagnosis.

[Read more…]

Filed Under: Stories Tagged With: advocacy, advocate, als, ALS Advocacy, als clinics, ALS drug, ALS Research, als stories, ALS Texas, ALS treatment, clinical trial, clinics, diagnosis, disaster relief, Donate, houston, hurricane, Lou Gehrig's Disease, national als advocacy day, pals, patient services, Public Policy, support groups

First Recipient of Harrison Brown Volunteer of the Year Award Honored at the Austin Walk

November 9, 2017 by Elise Bernard 2 Comments

Whitney Sadler is the first recipient of the Harrison Brown Volunteer of the Year award.

We had the privilege of awarding the first Harrison Brown Volunteer of the Year award to Whitney Sadler at the 2017 Austin Walk to Defeat ALS.

The award honors the late Harrison Brown who lost his life in the stabbing at the University of Texas in May 2017.

[Read more…]

Filed Under: Advocacy, Stories Tagged With: advocacy, advocate, als, ALS Advocacy, ALS awareness, als stories, ALS Texas, Austin, Lou Gehrig's Disease, Max's Ride, Public Policy, volunteer, walk to defeat als, why we walk

The Walk to Defeat ALS: A Perfect Day

November 6, 2017 by wpengine Leave a Comment

Tom Frugé was diagnosed with ALS in May 2017 and attended the Fort Worth Walk to Defeat ALS on Saturday, November 4, 2017. His Walk team, Team Tom, is the top fundraising team in Texas in 2017, raising over $40,000. Read about his experience at the Walk. 

[Read more…]

Filed Under: Stories, Walk to Defeat ALS Tagged With: als, als stories, ALS Texas, Lou Gehrig, Lou Gehrig's Disease, Luckiest Man, pals, walk to defeat als, why we walk

First Radicava Recipient in Texas Hopes Others Will Benefit from New Drug Too

September 19, 2017 by Elise Bernard 7 Comments

Lois is a wife, a mother of two girls, and grandmother to seven grandchildren.

After 46 years of teaching, Lois Albright retired, and she and her husband moved from their home in Brenham, Texas to Austin to be closer to family. Her daughters had been encouraging her to retire for many years, but she loved to teach.

“People who retire just get sick or have bad things happen to them,” Lois would say in response.

Just a few months after she retired, Lois was diagnosed with ALS in February 2017 – on Valentine’s Day.

Who would’ve thought?

[Read more…]

Filed Under: Inspiring PALS, News Tagged With: als, ALS awareness, als clinics, als cure, ALS drug, ALS News, als stories, ALS Texas, ALS treatment, diagnosis, Edaravone, pals, Radicava

Harvey Intensifies Daily Challenges for Those Living with ALS

September 7, 2017 by Tanner Hockensmith 2 Comments

ALS Texas commits to helping patients through recovery process

I’ve driven down I-45 toward Houston countless times, but this time was different.

Instead of normal business traffic, I was surrounded by trucks filled with bottled water, construction material, and other basic necessities. Pulling a load of supplies and medical equipment behind me too, I felt uneasy about what I would face when I crossed into Houston.

When I finally did so, one of the first things I noticed was that the devastation was different from block to block. We crossed one debris-lined street only to come upon another that displayed life as normal – houses untouched by the storm and people eating on patios outside of restaurants.

[Read more…]

Filed Under: News, Stories Tagged With: als, ALS awareness, als stories, ALS Texas, disaster relief, Donate, harvey, houston, hurricane, Lou Gehrig's Disease, pals, patient services

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