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Home > Navigating ALS

Navigating ALS

Life changes after an ALS diagnosis. There are decisions to make, symptoms to manage, treatment options to evaluate, and adjustments to almost every detail of your daily routine. It’s a lot to take in.

We’re here to help you navigate those changes. From initial diagnosis to end-of-life plans, we have information and resources to guide you through every aspect of your ALS journey.

ALS Basics

Understanding ALS – Learn the basics of ALS, including what “amyotrophic lateral sclerosis” really means and who is at risk of developing the disease.

ALS Symptoms – Learn the early signs and symptoms that could indicate someone has the disease.

Stages of ALS – See how the disease progresses, from the initial stages to the final steps.

ALS Causes – What we know so far about the causes of amyotrophic lateral sclerosis.

Lou Gehrig and the History of ALS – How a famous baseball player brought awareness to an illness that it still sometimes called “Lou Gehrig’s Disease.”

ALS Diagnosis

Newly Diagnosed – What to do if you’ve recently been diagnosed with ALS.

Second Opinions – Should you get a second opinion? If so, how do you go about getting one?

How to Share Your Diagnosis – Tips on when you should tell people, what you should tell them, and how to share the news with your children or parents.

What Do I Do Now? – The next steps regarding insurance, employment, finances, and legal documents.

Living With ALS

Therapies & Care – A look at the different types of therapy services and medications that can be helpful in managing ALS symptoms and improving your quality of life.

Nutrition – How to maintain proper nutrition as eating and swallowing become more difficult.

Breathing Issues – Techniques and equipment to help you get the air you need as ALS weakens the muscles that control breathing.

Speech & Swallowing – A variety of tips for clearer speaking, better listening, and easier swallowing.

Improving Mobility – Therapies, exercise, equipment, and home improvements to help ALS patients get around more easily.

Anxiety & Depression – The signs and symptoms of depression, and how you can get the help you need.

Changes in Thinking & Emotional Lability – How ALS can change your thinking, behavior, and emotional patterns.

Assistive Equipment & Technology – A variety of technologies and devices can help ALS patients manage their symptoms and maintain a better quality of life.

Living Setting – Home care, assisted living, nursing homes, adult foster care, and other options for different living settings.

Daily Living Activities – ALS symptoms usually necessitate changes to your everyday activities. Learn how you can adjust your daily living activities and create a new normal.

Leisure Activities – How to enjoy your favorite leisure activities despite the challenges of ALS.

Caring for Someone With ALS

Caregivers – Help for those who tend to the needs of a loved one with ALS.

Resources for Caregivers – Where caregivers can find support, information, and assistance.

Practicing Self-Care – How to care for yourself as you care for someone else.

From One Caregiver to Another – An ALS caregiver shares her story.

Resources

Medicare – How to navigate the Medicare system.

Taxes – How to manage your tax obligations and minimize your financial burden.

ALS Association Services & Publications – A list of available services provided by the ALS Association, as well as free in-depth publications and periodicals that provide detailed information about the disease.

Clinics & Centers – A list of ALS Association Certified Treatment Centers and ALS clinics in Texas.

Support Groups – A list of local support groups for ALS patients, caregivers, and loved ones.

Register With ALS Texas – Connect with us so we can connect you with the local resources and services you need.

ALS Glossary – A list of all the vocabulary terms and definitions you need to understand the world of ALS.

End of Life Plans

Advance Directives – Learn what advance directives are and why you might consider creating one.

Hospice Care – Information on hospice care options.

Have questions? Feel free to contact us at ALS Texas.

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