2022 Mid-Year Update: Connecting Texans with ALS in New Ways
We’ve made a commitment to serve more Texans with ALS and caregivers than ever before. Despite the challenges, from a...
The Walk to Defeat ALS: Cindy’s Angels
For Austin Reyna, his mom, Cynthia, had always been his rock growing up. He knew he could always count on her for...
A Note from Tonya: Seasons of Resilience
In the span of just one week, my community in Texas (DFW) has gone from being in a severe drought to the Governor...
Staying Connected on the ALS Journey: Norman and Dee Jones’ Story
Faith has guided Norman Jones his whole life. Even in the face of an uncertain ALS journey, it hasn’t wavered. Norman...
A Note from Tonya: If You’re Happy and You Know It
“That makes me happy!” “Is anyone really truly happy?” “I’ll be happy when…” We have all heard someone say these...
We Can’t Wait: ALS Advocates Urge the FDA to Expedite Access to Experimental Therapies
The average life expectancy for someone after an ALS diagnosis is only 2 – 5 years. However, the process of...
Messy Motherhood: Jennifer Mercz’s Story
I felt I was falling short in a lot of places. You can’t have it all together. In January 2019, after a year of...
Embrace the Equipment: Mike & Mary Busch’s Story
As ALS progresses, it robs you of the ability to eat, speak, move, and breathe on your own. One of the most important...
A Note from Tonya: Our Hope Is Our Belief, and Belief Is Our Hope
May is ALS Awareness Month. While every month of the year brings a long list of very worthy causes to our...
2021 Under Ballou Skies Hero: Sarah Durand
This year, we are honoring Sarah Durand as our ALS hero during the Under Ballou Skies Golf Classic & Party. In the...
Telehealth Coverage for Speech Therapy Services Extended through the Duration of the COVID-19 Pandemic
In a huge win for the ALS community, the Centers for Medicare & Medicaid Services (CMS) expanded telehealth...
A Note from Tonya: Bird’s Nest on the Ground
With each of our monthly newsletters, our goal is to truly engage with each of our families- to share the latest ALS...