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Introducing UNLOCK ALS

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The ALS Association Introduces New Mission Integration Concept at the Walk to Defeat ALS

Each year, hundreds of thousands of people across the country bring their determination, energy, and passion to the Walk to Defeat ALS to celebrate the progress made in the search for a cure with the ALS community. This year, we’ll honor our loved ones who are battling ALS and who have battled ALS through our new program UNLOCK ALS.

We’ll celebrate the real possibility of unlocking the mysteries of ALS. Anyone may hold the key to UNLOCK ALS – a fundraiser raising funds for the cure, a person with ALS participating in a clinical trial, a researcher developing treatments, even you.

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New Leadership Model Enhances Mission Focus in Greater Houston Area

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ALS Association Greater Houston team (left to right): Jordan Coldrick, Care Services Coordinator; Paulette Bennett, Care Services Manager; Alexis Hyatt, Database and Operations Coordinator; Jessica Welch, Regional Director; Eniye Elegon, Regional Development Coordinator

In July 2016, the ALS Association of Texas welcomed Jessica Welch as the organization’s first Regional Director on its statewide team. Tasked with leading the full mission of the ALS Association in the Greater Houston and East Texas region, her leadership in this new role has catapulted the Chapter forward in achieving its mission.

Thanks to this new on-the-ground leadership in the region, the team in the Houston office has a greater sense of ownership of their work and a renewed passion for ensuring they successfully meet the needs of those living with ALS in the region. And the results are evident with improved communications and team cohesiveness among the care services, fundraising, and operations functions.

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ALS Caregiver Recognized for Excellence in Caregiving

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Caregivers of people with ALS are crucial in the care of their loved ones battling this disease. Being the primary caregiver for a loved one with ALS can be stressful – not only are you on call 24/7, but you may have additional outside responsibilities, like working a full- or part-time job or caring for additional family.

ALS caregiver Trixie Stanford was honored at the Gordon Hartman Family Foundation‘s 2nd Annual Excellence in Caregiving Awards in April. A Belton resident, Trixie serves as the primary caregiver for her son Charlie.

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Fishermen Cast a Line for ALS

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On June 8 and 9, more than 65 fishermen from around the state gathered for the first-ever ALS Fishing Classic in Port Mansfield, Texas, raising $30,000 for the fight against ALS.

Participants competed in a speckled trout and redfish competition for prizes furnished by Yeti. They enjoyed a raffle, live and silent auctions, and delicious local food.

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ALS Can Never Steal the Joys of Motherhood

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In 2001, Patricia and Oran Hamilton welcomed their son Patrick into the world. As Patricia started this new chapter in her life, she knew that she wanted to cherish every moment of motherhood. Over the years, she watched as her son grew, encouraging his love of learning.

When Patrick was 11, Patricia started experiencing weakness in her hand, and went to a neurologist who gave her three different diagnoses. In March 2014, she was finally diagnosed with ALS.

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Texans Travel to Washington, D.C., to Advocate for People with ALS

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Twenty-two Texans traveled to Washington, D.C., in May to attend the National ALS Advocacy Conference.

More than 570 ALS advocates from across the country joined together for the 2018 National ALS Advocacy Conference in Washington, D.C., on May 13-15. Nearly every state in the country was represented, with 22 advocates hailing from Texas.

Stacey Crowder was one of the Texans who went to D.C. to advocate for People with ALS. Stacey was diagnosed with ALS on August 11, 2016. He’d first noticed a slight twinge in his left bicep earlier that year, and when he received an ALS diagnosis, it took him and his family on an emotional roller coaster. At first, Stacey was devastated and scared, but he was able to cope by relying on his spirituality and the support of his friends and family.

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Golfers Tee It Up for the Fight Against ALS

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ALS Texas Board Member and CBS Austin Sports Director Bob Ballou (right) hosts 4th Annual Under Ballou Skies Golf Classic.

Golf, sports, and fighting ALS. The 4th Annual Under Ballou Skies Golf Classic is a unique combination of these three things. This year’s event raised $70,000 for ALS research and patient care programs, with more than 130 golfers participating.

This one-of-a-kind event incorporates several sports-themed contests throughout a round of golf at the Twin Creeks Country Club in Cedar Park, Texas. Golfers shot hoops with Hoops Austin, pitched with the Round Rock Express, and played a little golf pong.

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New Salsa Business Provides Purpose After an ALS Diagnosis

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Tami Potts has been canning her homemade salsa since her 20s.

Tami Potts has been canning her homemade salsa since her 20s. People have always told her that she should start her own salsa company, but between raising four kids and working, she never had much time to pursue that opportunity.

In the summer of 2016, Tami’s right hand started going numb. Her doctor told her it was time to consider another profession, as she spent many long days as a mail carrier. Tami’s daughter suggested finally starting up that salsa business.

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3rd Annual Shoot Out ALS Tournament Explodes with Success

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Harvey Builders win first place in the 2018 Shoot Out ALS tournament.

On Monday, March 26, more than 150 shooters gathered for the 3rd Annual Shoot Out ALS tournament at the Greater Houston Gun Club, raising $127,000 for the fight against ALS. Shooting enthusiasts participated in an afternoon shoot followed by cocktails and dinner, a live auction, and an awards reception.

At the tournament, we recognized ALS Hero JC Creath. Before ALS, JC and his wife Andrea were photographers, always on the go. While busy photographing weddings, families, pets, and babies, the symptoms of ALS began. JC began tripping and falling, and he struggled to catch his breath at times.

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Another Winning Hand in the Fight Against ALS

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On Saturday, January 20, more than 250 people attended the 14th Annual All in for ALS Poker Tournament. The event raised over $185,000 for the fight against ALS and to help fulfill our mission of finding treatments and a cure while serving, advocating for, and empowering people affected by ALS to live their lives to the fullest.

All in for ALS began in 2004 in honor of Stu Nichols. Stu and his son Andrew had a mission to visit every ballpark in the U.S. throughout Andrew’s childhood. Amidst their journey, Stu was diagnosed with ALS. After his diagnosis, he was still committed to visiting the remaining ballparks, but he also wanted to find a way to fund research for a cure for ALS. Andrew had been playing online poker at the time and was interested in playing in the World Series of Poker tournament. They decided to start a poker event that would benefit people living with ALS.

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