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  • Understanding ALS
    • ALS Symptoms
    • Stages of ALS
    • What Causes ALS?
    • Lou Gehrig and the History of ALS
    • ALS Glossary
  • Who We Are
    • What We Do
    • Our Leadership
    • Financial Information
    • Our Partners
    • Careers
  • Research
    • How ALS Patients Can Help
    • Research Resources
    • Research News
    • ALS Association Research
  • Navigating ALS
    • Newly Diagnosed
      • What Do I Do Now?
      • How to Share Your Diagnosis
      • Second Opinions
      • Resources
      • Clinics and Centers
    • Living with ALS
      • For Patients
      • Therapies & Care
        • Nutrition & Feeding Tubes
        • How to Improve Mobility
        • Dealing with Breathing Issues
        • Dealing with Speech & Swallowing Issues
        • Types of Assistive Equipment & Technology
        • Clinics and Centers
      • Living Setting
      • Daily Living Activities
      • Leisure Activities
      • Accessible Vehicles
      • More in Depth Resources/Manuals
    • Coping with ALS
      • Dealing with Anxiety/Depression
      • Changes in Thinking & Emotional Lability
      • Support Groups
      • Resources
    • For Caregivers
      • Caregiver Program
      • Caregiver Resources
      • Practicing Self Care
      • From One Caregiver To Another
    • For Youth & Children
    • Virtual Support Groups & Workshops
      • Past Virtual Event Recordings
    • Resources
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      • Taxes
      • Advance Directives
      • More in Depth Resources/Manuals
      • Register with ALS Texas
  • Get Involved
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      • Register for a Walk
    • Texas Chapter Events
      • Houston Marathon and Half Marathon
      • All In For ALS Poker Tournament
      • Sporting Clay Shoot
      • Under Ballou Skies Golf Classic and Party
      • ALS Fishing Classic
      • The Cowtown Affair
    • Calendar of Events
    • Fundraising Opportunities
    • Ways to Give
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ALS Films to Watch

May 24, 2017 by Tanner Hockensmith 1 Comment

There are many ways, both big and small, to raise ALS awareness. Some people have used their filmmaking or public speaking talents to craft compelling stories of those living with this disease. From TED talks to award-winning documentaries, these videos inspire, educate, challenge and entertain viewers, while celebrating the lives of people with ALS and the contributions they have made.

Below are a few must see videos and films about ALS that are worth watching and sharing with family and friends.

[Read more…]

Filed Under: Stories Tagged With: als, ALS awareness, als stories, ALS Texas, pals

ALS Camps Provide Hope, Help Kids Cope

May 12, 2017 by Tanner Hockensmith 3 Comments

Although children and teens are very unlikely to develop ALS, that doesn’t mean they aren’t affected by the disease. 85% of people who do have ALS report having children or grandchildren who are directly impacted. Coping with a parent or grandparent’s ALS diagnosis is never easy, but it is especially hard for children, who don’t have the same emotional maturity as their adult counterparts. Becoming a caregiver for someone is a difficult transition to make when you’re used to having that person take care of you. And since it’s unlikely that any of a child’s friends would have experience dealing with ALS, it can leave them feeling alone, with no one to really talk to.

[Read more…]

Filed Under: Advocacy Tagged With: advocacy, als, ALS awareness, als stories, Donate

Update: SUCCESS! Help Teach Siri About ALS Awareness

May 10, 2017 by Tanner Hockensmith Leave a Comment

Updated on 5/11: We did it! Thanks to your overwhelming support in petitioning Apple, Siri was updated in less than 24 hours. Now asking Siri, “What is ALS?” brings up the following definition:

“Amyotrophic lateral sclerosis (ALS), also known as Lou Gehrig’s disease and motor neuron disease (MND), is a specific disease that causes the death of neurons which control voluntary muscles.”

[Read more…]

Filed Under: Advocacy Tagged With: advocacy, advocate, als, ALS awareness, ALS Texas

Frequently Asked Questions about Radicava™ (Edaravone)

May 6, 2017 by Tanner Hockensmith 21 Comments

Based on information as of 5/5/2017

What is Radicava?

Radicava™ (edaravone) is a prescription medicine approved by the U.S. Food and Drug Administration (FDA) to treat people with amyotrophic lateral sclerosis (ALS).1

In clinical trials, some people given Radicava showed significantly less decline in physical function compared to placebo as measured by the ALS Functional Rating Scale-Revised (ALSFRS-R), a validated rating instrument for monitoring the progression of disability in patients with ALS.1,2

[Read more…]

Filed Under: Research, Research News Tagged With: als, ALS drug, ALS News, ALS Research, ALS Research Update, ALS treatment, FDA, Research, research news

FDA Approves New ALS Drug

May 5, 2017 by Tanner Hockensmith 3 Comments

Radicava is First Approved Treatment for ALS in Decades

The Food and Drug Administration’s (FDA) announced today that it has approved Radicava (edaravone), the first new treatment approved specifically for ALS in 22 years. The FDA approved Radicava less than a year after Mitsubishi Tanabe Pharma Corporation submitted a New Drug Application. The only other approved treatment specifically for ALS, riluzole, was approved in 1995.

“We thank the FDA and MT Pharma for working together to expedite the approval of the first new ALS-specific treatment in decades,” said Barbara Newhouse, president and CEO of The ALS Association. “We hope today’s announcement signals the beginning of a new chapter in the fight against this terrible disease. There are several drugs to treat ALS currently in clinical trials and we are hopeful that people living with ALS have even more therapies available to them sooner rather than later.”

[Read more…]

Filed Under: Research, Research News Tagged With: als, ALS drug, ALS News, ALS Research, ALS Research Update, ALS treatment, FDA, national als advocacy day, Research, research news

New Research Brings Help, Hope to People with ALS

May 5, 2017 by Tanner Hockensmith Leave a Comment

ALS is a devastating disease with no cure.

But researchers are working to change that. The increased awareness and donations provided by events like the ALS Ice Bucket Challenge—and by people like you—are making a real difference in the pace of discoveries, bringing us ever closer to the end of ALS.

Here are just a few examples of recent advancements in ALS research and technology:

[Read more…]

Filed Under: Research Tagged With: als, ALS awareness, als cure, ALS Research, ALS Research Update, ALS treatment, biomarker, Research, research news

Make a Difference This May

April 30, 2017 by Tanner Hockensmith 1 Comment

May is ALS Awareness Month!

Awareness is critical to our goal of ending ALS forever. The more people know about ALS, the more they get involved, and the more they support ALS advocacy and research. Through that support, we’ve made great strides toward finding potential treatments for ALS.

But we need your help to spread the word and keep the momentum going! It’s people like you who make everything we do possible. Here are a few ways you can take part in ALS Awareness Month:

[Read more…]

Filed Under: Advocacy Tagged With: advocacy, advocate, als, ALS Advocacy, ALS awareness, ALS Texas, Donate, walk to defeat als

A Year in Review: Letter from the Executive Director

December 7, 2016 by Tanner Hockensmith Leave a Comment

It’s been said that if you want to move forward, you need to first look back – to remember not only where you came from but also where you need to go. As I look back on 2016, I am reminded of areas of great improvement, but I also see many opportunities for growth.

In 2015, the ALS Association of Texas increased its patient reach across Texas by almost 50 percent in one year. In response, we made many strides to grow our programs and services to fulfill our mission in 2016, including adding a new ALS clinic and loaning out the largest amount of equipment we ever have.

[Read more…]

Filed Under: News Tagged With: als, als clinics, ALS Texas, clinics, Donate, end of year giving, grants, pals, patient services

Vote for ALS Texas to Win $51,000 from the Chevron Houston Marathon!

December 5, 2016 by Tanner Hockensmith Leave a Comment

Here’s a quick and easy way you can make a big difference and help ALS patients throughout the state of Texas: Through the Chevron Houston Marathon “Run for a Reason” program, people can vote online for their favorite Texas charity. Whichever organization receives the most votes between now and the marathon will win $51,000.

By simply voting for the ALS Association Texas Chapter, you could help us earn $51,000!

Vote Now

[Read more…]

Filed Under: Advocacy, Fundraising Tagged With: chevron marathon, contest, fundraising, houston, houston marathon, marathon

Executive Director Tanner Hockensmith Shares Experience with ALS, Vision for Texas Chapter

July 7, 2016 by Tanner Hockensmith Leave a Comment

Life is funny. If someone had told me when I graduated college that I would be leading an effort to help people with ALS and to put an end to this disease, my response would have been “ALS? What the heck is that?” But now, I can’t imagine a life not knowing what it is, not fighting every day to ensure patients get quality care, and not fighting like hell to find a cure for this disease.

Hockensmith Family

[Read more…]

Filed Under: Stories Tagged With: als, ALS partners, ALS Texas, leadership

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