Every year, a group of ALS Texas staff, ALS patients, caregivers, and supporters travel to Washington, D.C., to call on our elected officials as part of the National ALS Advocacy Day.
What Is Advocacy Day?
The National ALS Advocacy Day was created in 1998 so people living with this disease and their caregivers can tell their stories to the people who have the most capacity to improve their lives — their elected officials. Our Advocacy Day priorities range from increasing funding for ALS research to making sure ALS patients have access to essential medical care and services.
Advocacy Day also provides an opportunity for patients and caregivers to network with others who understand their stories, learn about cutting-edge government and ALS Association research programs, and ensure that their voices are heard.
Our 2021 Advocacy priorities include:
- Accelerate Development, Approval and Access to Effective New Treatments
- Increase Federal Funding for ALS Research
- Permanently Extend Access to Telehealth for People Living with ALS
- Provide High-Quality, Affordable, and Accessible Health Care
- Increase Veterans Benefits for People with ALS and their Families
How You Can Get Involved
The 2021 ALS Advocacy Conference is virtual, and registration is open to the public! During the 2021 National ALS Virtual Advocacy Conference, attendees will learn the latest updates in ALS research, care services and advocacy, leading up to a virtual day of action. Together, we will continue to fight ALS by educating policymakers, driving action to increase funding for research, accelerating the search for treatments and improving access to care.
Want to stay in the know of all things happening on the advocacy front? Become an ALS Advocate! We’ll send you email updates about how you can get involved in ALS advocacy opportunities in Texas and beyond.