Get Involved, Make A Difference
The ALS Association is at the forefront of public policy working to improve the lives of people living with ALS and their caregivers. Through the active participation of people with ALS and their families, we’ve made some significant advances, including:
- Reducing the waiting period for patients with ALS before receiving benefits under Social Security Disability Insurance from 2 years to 5 months.
- Increasing funding for research efforts that are searching for treatments and a cure for ALS.
- Opposing competitive bidding for non-invasive ventilators.
- Supporting the creation of and securing funding for the National ALS Registry, a Centers for Disease Control registry of patients that helps research scientists understand ALS and its causes.
- Improving benefits for military veterans diagnosed with ALS.
Because ALS still has no cure, there is still much to do. To continue this advocacy, we need your support through the ALS Association Advocate Program.
Our Advocates are passionate about encouraging government officials at all levels — state, local, and federal — to improve awareness and resources for people affected by ALS. Advocates are people who affect real change in the way that our government responds to the needs of the ALS community.
Even if you aren’t a friend, relative, or supporter of a legislator, your outreach can help us open doors. Advocates with the ALS Association help change the laws and policies that affect all people with ALS and their families every single year.