When Kristin Sedate’s father was diagnosed with ALS in 2014, she stepped in to serve as one of his primary caregivers. Read her story about their journey through ALS and what your donations meant to their family.
Sha Groves lost her husband Greg to ALS in 2014, but continues to be involved with ALS Texas to help those currently battling this disease. Read her story about their journey with ALS and how Buffalo Wild Wings stepped in to help.
Robert Gregory Groves, better known as “Greg,” was a lovely man. From our first introduction, he seemed very quiet. He loved to observe and was quite the jokester. He started his career at Buffalo Wild Wings in November 2005 as an Assistant General Manager in Rosenberg, Texas. He worked his way up to General Manager and then was eventually promoted to Regional Manager. The company was under huge growth at the time, and he knew he had found his home. He was responsible for opening up several locations in Houston and the surrounding area.
David Cabe was diagnosed with ALS in 2015 and is an active participant in the Austin Walk to Defeat ALS as part of his team, Cabe’d Crusaders. Read about what participating in the Walk means for him and his battle with ALS.
As many of you know, I have ALS. This is a devastating disease. By the time I was diagnosed, it had already robbed me of the ability to walk unaided and was relentlessly taking away the ability to use my hands, swallow, speak, and breathe. But just knowing where to turn after my diagnosis was almost as daunting and overwhelming as the disease itself.
Kate Solomon has served as the Manager of Community Affairs and Public Relations for the ALS Association of Texas since March 2015. Prior to joining the Chapter as a staff member, Kate volunteered for six years, helping with The Woodlands and Greater Houston Walks to Defeat ALS and the Chevron Houston Marathon. She ran in the Houston Marathon in 2011, 2014, and 2015 in memory of her dad. Read her story below.
For many years now, running has been an important part of my life. ‘Coordinated’ is not a word people would use to describe me, so a sport that simply required me to put one foot in front of the other seemed like the perfect fit for me!
Whitney Sadler has organized Max’s Ride for ALS – a motorcycle ride through Texas Hill Country – for the past 10 years in memory of her friend Max. Read their story of friendship throughout Max’s fight with ALS and how Whitney carries on his legacy.
Max R. Harrison served in the Army and was part of the deployment in Desert Storm. He was an honorable, strong, loyal, blued-eyed guy with an incredible sense of humor. His mission began when he found out that he had ALS at just 32. His goal from the first day of diagnosis was to raise awareness of ALS and funding for research and patient services too.
Frank and Barbara Ildebrando began dating on Barbara’s 16th birthday and would have been married for 48 years this May. They began their life together in New York, and in 1969 they moved to Texas and had three children – two boys and a girl.
In May 2014, Barbara first began showing symptoms of ALS. She and her husband went to the doctor, and when the doctor asked if Barbara had trouble lifting her legs, she said yes – a surprise to Frank.
A new documentary tells the true story of how ALS has changed one Texan’s life—for the better.
John Paine, known as a devoted father and hardworking businessman, was diagnosed with ALS 15 years ago. Though the disease has weakened him physically, in other ways he believes ALS has made him stronger. “The Luckiest Man” explores his journey and tells the inspiring story of how he has chosen to live life to its fullest.
Guest post by Trece Porrata, a patient with ALS
My husband was challenged to do the Ice Bucket Challenge last year when we were visiting friends in Port Aransas with our kids. As he was filling the bucket with ice, he jokingly asked me, “Wait, what am I doing this for?” I replied, “ALS, silly!” realizing that I didn’t actually know what it was.
Quickly, I went into the house to do some research about ALS. I ended up on the ALS Association of Texas website, reading through ALS symptoms. As I went down the list — muscle weakness, fine motor control issues — I noticed that I had been experiencing some of those same symptoms lately. But I didn’t think much of it at the time — after all, ALS is a man’s disease, right? And we had an Ice Bucket Challenge to complete. I went back outside to tell my husband what ALS was, and moments later I was laughing at his reaction to the freezing water, handing them towels and forgetting all about my symptoms.
My name is Ernie Worth. I am a 38-year-old husband, a father of three, and an ALS patient.
For months leading up to my diagnosis last fall, I had been experiencing speech difficulties. For me, this was very strange, as I have always enjoyed giving presentations, public speaking, and the like. It started out subtly, and gradually got worse as time went by. I was also rapidly losing weight, and since I have always been very physically fit and health-conscious, the physical change was quite obvious and disturbing.
Alexis Crow was diagnosed with ALS on her 20th birthday.
Two years later, it would be easy for Alexis to let ALS define her. The disease’s symptoms have forced changes in much of her day-to-day life, while her bright green wheelchair announces her physical limits to everyone she meets.
However, Alexis has chosen not to let ALS consume her life. She has ALS; ALS does not have her.